P.E.

"I feel like I'm living a double life sometimes"

 "I feel like I’m living a double life sometimes. It’s a very lonely disease because I can’t hangout with other people who have Cystic Fibrosis. I grew up not being able to talk to anyone who understood it."

"It’s a very invisible disease but it’s also very impactful.  In my home town everybody knows who I am because of it, so when I got to Fox I was struggling with the thought that, yes it is a part of me, but it’s not who I am."

"It’s really been on my heart lately to share this part of my story.  Learning to live in the moment knowing that overnight something could happen but also not being fearful of it all the time.  My parents taught me that you can have nights when you cry about it, but you still have to pick up your life and keep going."

 

"Now I’m trying to navigate how to be a nurse and have it be an asset, not a hinderance; proving to schools that I can do this, that it just looks different."

 

"I definitely feel that I grew up fast. And sometimes I think for the good and sometimes not. My parents talk about how, when I was in first grade, I could name all of my medications.  She said that shouldn’t be in a six year olds vocabulary.  So things like that were really hard for my them.  In High school and even now, I struggle with people not understanding because I haven’t been able to talk to anybody who’s walked in my shoes."

 

"Now that I’m at the milestone of 5 years without an incident, I’m trying to be proud of it."

"I just want people to know that they can live a normal life.  That it's not something to be ashamed of."

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